国产热热热精品,亚洲视频久久】日韩,三级婷婷在线久久,99人妻精品视频,精品九热人人肉肉在线,AV东京热一区二区,91po在线视频观看,久久激情宗合,青青草黄色手机视频

Global EditionASIA 中文雙語Fran?ais
China
Home / China / Society

Rare disease medicine debuts in China

By ZHOU WENTING | chinadaily.com.cn | Updated: 2019-04-28 15:31
Share
Share - WeChat
Biogen, the United Sates-based pharmaceutical company. [Pohto/IC]

The world's only medicine treating spinal muscular atrophy (SMA) is entering the Chinese market, it was announced Sunday.

The drug is registered under the name Spinraza in the United States and European Union.

Available in more than 40 countries and regions, Spinraza is expected to bring new hope for those who living with SMA, a genetic disorder that affects muscle control, in China.

SMA affects between one in 6,000 and one in 10,000 in China, and about 95 percent of the patients die 18 months after birth, doctors said.

Before the drug was available on the Chinese mainland, there was little effective therapy for the disease, and patients depended mainly on treatment such as respiratory and nutrition supports, said Xiong Hui, Beijing Medical Association rare disease committee member and Peking University First Hospital deputy director of pediatrics.

Spinraza debuted on the Chinese mainland having been fast-tracked through the market approval process for rare disease drugs, which, available overseas since July, are urgently needed in China.

The drug began the approval process in September and was issued a license in February.

Premier Li Keqiang said in February that the government will step up efforts to guarantee more than 20 million rare disease patients have access to required medication.

Medical experts said bills for patients requiring 29 of the 55 rare disease medicines available on the Chinese mainland have been partly or fully covered by the country's medical insurance system.

The average medical bill for rare disease patients is 200,000 yuan ($29,700) a year and more than 40 percent of patients have received no medical treatment due to the high prices, according to Li Linkang, China Alliance of Rate Diseases executive director.

Biogen, the United Sates-based pharmaceutical company that developed the drug, said that it is talking to the Chinese government, the medical and patient communities, and charitable organizations in a bid to establish a co-payment system to make the drug available to more patients.

Top
BACK TO THE TOP
English
Copyright 1994 - . All rights reserved. The content (including but not limited to text, photo, multimedia information, etc) published in this site belongs to China Daily Information Co (CDIC). Without written authorization from CDIC, such content shall not be republished or used in any form. Note: Browsers with 1024*768 or higher resolution are suggested for this site.
License for publishing multimedia online 0108263

Registration Number: 130349
FOLLOW US
 
河间市| 靖宇县| 防城港市| 潮安县| 余姚市| 静宁县| 铅山县| 教育| 广水市| 古交市| 巨野县| 湟源县| 桦南县| 剑川县| 平定县| 咸宁市| 柳林县| 巢湖市| 勐海县| 方山县| 缙云县| 桂平市| 泾川县| 平乡县| 新建县| 平武县| 黄大仙区| 泰来县| 永春县| 龙州县| 盐源县| 正宁县| 若羌县| 页游| 平山县| 锡林浩特市| 五家渠市| 潞城市| 托克托县| 长岭县| 阿荣旗|